A lot of the feedback and stories from members are truly heart-breaking and really showcase the range of reactions loved ones can have to chronic illness. There are also some uplifting and positive stories of love that has grown and bonds which have strengthened, enabling self-worth to remain and grow despite the hardship. Our illness can taint our vision of ourselves in the most soul-destroying way. We may not be top class athletes, world travellers or party animals at the moment but on good days, some of us may still be able to enjoy light exercise, travel locally and enjoy a meal out with friends. This can leave many people feeling very depressed and lead to black and white thinking where people see life as either a total success or as a total failure. This can lead to a breakdown in many friendships and relationships.
How Hypochondriacs Say ‘I Love You’
July 21, 6 min read. Last week, we were talking about COVID, and he said that he and his family have never gotten it, but that a year ago, his big brother had Lyme disease. What is Lyme disease? Is it a venereal disease? I’m too embarrassed to ask my friends about this in case the answer is really weird or scary, but my curiosity about this is really driving me crazy.
Chronic Lyme Disease Think Tank. Held on April 13, in Vancouver, BC and sponsored by BC Women’s Hospital, UBC Faculty of Medicine and CanLyme.
I was going to be okay. Almost every symptom fit perfectly. Before my Lyme diagnosis, they’d told me that I might just have “incurable depression,” and that my mind was the problem. They’d said that it could also be Hashimoto’s disease, chronic fatigue syndrome, a relapse of the Epstein-Barr virus from the mono I’d had as a teenager, a hormone imbalance, fibromyalgia, pernicious anemia, nutritional deficiency, Attention Deficit Disorder, Post Traumatic Stress Disorder, epilepsy, Multiple Sclerosis, narcolepsy, obstructive sleep apnea, or a plethora of other scary possibilities.
While I did end up being diagnosed with a curable hormone imbalance, fibromyalgia and ADD, these still hadn’t accounted for even a fraction of my symptoms. But Lyme did. Inflammation of the joints? Tremors in my extremities? The chronic fatigue, the seizures, the short-term memory loss. The irregular heartbeat.
the silver lining of dating with Lyme disease
If you would like to participate in current online discussions with Lyme Expert, Dr. Daniel Cameron on Facebook and Instagram about important Lyme disease topics, click below. Online discussions with Lyme Expert, Dr. Daniel Cameron on Facebook and Instagram about important Lyme disease topics.
For me, having Lyme disease meant love wasn’t a top or even medium priority. But when I tried dating with a chronic illness, I learned a lot about myself. It seems I’ve finally found someone who wants to rest as much as I do.
I was recently diagnosed with chronic lyme disease. I am kind of afraid of dating. I know the right woman will understand. So how do I get my head and heart on the same page? Sorry for your health woes. Chronic Lyme is no joke, and I understand why you would be reluctant to date with a chronic illness.
I know it can feel scary to tell a stranger something serious about you, like that you have a chronic health condition. Yes, you may not be able to go for that hike that you would have loved to do pre-Lyme and it sucks to confront these limitations. So you can either keep your secrets and add to your stress or lighten the load and maybe get support in coping with your condition.
10 Things to Know About People with Post Treatment Lyme Disease
For articles and discussion of Lyme and other tick-borne diseases. Please don’t be a dick. We’re a supportive community, so even if you don’t necessarily agree with someone’s point of view, please say so politely and don’t attack anyone personally. Please do not post links to fundraisers. We know that you care about your friend, but you’re posting in a forum of people going through the exact same thing with the exact same financial troubles.
You’re not going to get donations from people struggling with paying for their own medical treatment.
Feb 2, – To the Dating Girl: I know you quite well. You’re me. It’s how girls are wired. Emily Ryan | Lyme Disease, Fibromyalgia, Chronic Illness Blogger.
A lot of people my age, somethings, are afraid that dating with Lyme disease is impossible. You feel like a leper and all your friends are partying. Why would someone pick you over someone like you but.. Love is blind at the beginning of every relationship. All honeymoon phases end and we begin to see clearly and realistically. What happens at this point when your partner realizes how much work you are?
How hopeless your situation sometimes seems? If you ask yourself this question often, then you may either keep up an act for as long as you can or constantly dissect your love until it is no more. If you are so worried about what a hypothetical partner would think of you, I am guessing you need validation from your peers.
Chest Port Access. I live in an Amish community in Ohio. I am clinically and blood culture Lyme diagnosed, my lab Lyme tests are seronegative. I have been sick for as long as I can remember.
Facebook groups for Lyme, ME, CFS, Mast Cell, Mold & Chemical Sensitivities, and a Women’s Lyme Disease Support Group · Western US Lyme The Sick and the Dating – Looking for Love Between Hospital Stays · Pain.
But there may be a bigger risk of getting Lyme disease in the bedroom. Carmel, CA — A new study suggests that Lyme disease may be sexually transmitted. The study was presented at the annual Western Regional Meeting of the American Federation for Medical Research, and an abstract of the research was published in the January issue of the Journal of Investigative Medicine. The Lyme spirochete resembles the agent of syphilis, long recognized as the epitome of sexually transmitted diseases.
Last summer the Centers for Disease Control and Prevention CDC announced that Lyme disease is much more common than previously thought, with over , new cases diagnosed each year in the United States. The present study was a collaborative effort by an international team of scientists. In the study, researchers tested semen samples and vaginal secretions from three groups of patients: control subjects without evidence of Lyme disease, random subjects who tested positive for Lyme disease, and married heterosexual couples engaging in unprotected sex who tested positive for the disease.
As expected, all of the control subjects tested negative for Borrelia burgdorferi in semen samples or vaginal secretions. In contrast, all women with Lyme disease tested positive for Borrelia burgdorferi in vaginal secretions, while about half of the men with Lyme disease tested positive for the Lyme spirochete in semen samples.
Why I Tell Men About My Chronic Disease on the First Date
I am going to do what I can to make sure no one else has to go through my nightmare. Sharane is determined to get back at the disease that left her severely debilitated for years. She is now on a mission to create greater awareness, understanding, and prevention of Lyme disease which she is pursuing through her new fashion startup, Peskys see blog post about Peskys here for more on that story.
When you are living with chronic Lyme disease or other persistent The stress of caring for someone with Lyme disease can leave them.
I was diagnosed with my first autoimmune disease shortly after my husband, Zach, and I got married. There was a time when Zach had very little patience with me and my ever changing symptoms. Before I was diagnosed with Lyme disease, anxiety was one of my worst symptoms. I literally thought I was going to die. I would wake Zach up in the middle of the night, looking for reassurance for unexplained chest pain or a mole that looked different.
I would jump to the worst case scenario in every situation, then perseverate on it for hours. Then, there was the year when I was really sick. I stopped being able to help out around the house and all the responsibilities feel on him. He wanted to go to concerts or out to a bar like we used to, but I was just too tired. By any definition, I was not a good spouse or partner and occasionally he would remind me of it.
Yet something shifted after he came with me to my first appointment with my Lyme specialist. He developed patience with me. He started to listen more, and sit with me while we talked through my symptoms.